Instead, it’s about one of my pet peeves: people who take advantage of those in dire medical situations with unsubstantiated and expensive cures that “your doctor doesn’t want you to know about”. I’ve always been surprised by people who take tons of vitamin C because it will cure what ails them, or people who think that just because something is natural, it must be healthy.
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That said, I was horrified to hear an NPR story last week that gave an entirely positive view of an experimental use for stem cells. I originally heard the story on Morning Edition last Tuesday. It described a $20,000 treatment that one Chinese doctor was doing where he would inject stem cells into children to cure a particular form of blindness. American doctors were advising their patients not to get it done, but parents willing to try anything were going there. I was disturbed that they were reporting the story as though it were proven fact that, because there were a few cases where the children seemed to improve, this was a great new treatment that might change the face of medicine. There was absolutely no skepticism in the report, except in the form of, “well our Doctor was skeptical about this, but we didn’t believe him and did it anyway and now look how great things are”. This plays right into the fears and assumptions that the Vitamin industry plays into – “we know something your Doctor doesn’t want you to know about”.
So I was relieved when, the next morning, Renee Montagne interviewed Dr. Borchert, who’s in charge of the Vision Center at Children’s Hospital in LA, to give his opinion on this miracle cure. He made some great points, including (a) This particular form of blindness can improve on its own, so there’s no telling that the stem cells had anything to do with the recovery and (b) If the treatment were really as simple as injecting a few stem cells, then $20,000 is an insane amount of money to charge and shows they’re taking advantage of the patients. Ms. Montagne also interviewed prominent Chinese scientists who are worried that this false treatment will ruin China’s entire reputation in biotech.
It’s clear to me that this is yet another way that people have the audacity to sell “hope” to the folks who need it most, but without delivering any of the real results. I hope next time Morning Edition takes the time to get the full perspective the first time around.